About the Klippel-Feil Syndrome Alliance

The Klippel-Feil Syndrome Alliance strives to:

• Unite individuals across the globe who are affected by Klippel-Feil Syndrome with the scientists and health practitioners who study and treat them.

• Empower people to advocate for themselves across medical sub specialties.

• Improve access to needed care, pain reduction, and higher quality of life.

Founding Members

Lisa Raman

Raman

Carolyn Bayer

Carolyn Bayer

Andrea Hennig

Andrea Hennig

Professional Advisory Committee

Dr. Philip Giampietro

Dr. Philip Giampietro

Dr. Dino Samartzis

Dr. Dino Samartzis

Dr. Raymond Clarke

Dr. Raymond Clarke

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