For more information on Rare Disease Day and how you can participate, visit the NORD website.
Handout for your use:
Please print out copies of this handout to help advocate if you are attending Rare Disease Day events, locally in your town, or wherever you go. Consider handing this out at your Dr’s office, hospital, physical therapy, pain management, massage, etc. Use this hand out to empower those affected by Klippel-Feil Syndrome and help educate others.